THURSDAY OCTOBER 30, 2008

HAPPY DAY BEFORE HALLOWEEN,

I AM SITTING HERE WEARING MY WITCHES HAT THAT THE CHAPLIN JUST BROUGHT BE, ITS A BLACK&WHITE ONE NOT A BLACK ONE MIND YOU SO I GUESS I HAVE TO BE A GOOD WITCH. COY AND HANNAH BROUGHT LUKE OVER IN HIS SKUNK OUTFIT YESTERDAY SOOO CUTE. JAKOB WORE HIS TELLATUBBY COSTUME FOR US LAST WEEKEND, HE DREW QUITE A CROWD DOWN ON 16TH STREET.

THE DOCTORS HAD GOOD THINGS TO SAY YESTERDAY, RASH LOOKS BETTER, ALL FUNCTIONS ARE GOOD SO WE WILL SEE WHAT THEY HAVE TO SAY TODAY. THE NURSE WAS WANTING TO KNOW THIS AM IF I COULD BE READY TO LEAVE TOMORROW BY NOON, I TOLD HER I COULD AND WOULD BE READY BY NOON TODAY!!!! I DID HAVE TO HAVE 2 UNITS OF BLOOD THIS AM. ALL OF MY NUMBERS WILL CONTINUE TO DROP SO WILL HAVE TO EXTRA CAREFUL NOT TO GET ANY UNWANTED GERMS. MY WHITE CELL WENT DOWN SO THATS A GOOD SIGN.

HAVE A GREAT DAY, LOVE BRENDA AND BRIAN

TUESDAY OCTOBER 29, 2008

GOOD MORNING,

THE SUN IS SHINING BRIGHTLY HERE AND IS SUPPOSE TO CONTINUE THRU THE WEEK, CANT WAIT TO GET BACK OUT THERE. I MADE IT THRU THE NITE WITHOUT A HITCH, JUST LOTS OF NURSES TAKING BLOOD EVERY HR TO CK BLOOD SUGAR. I DID HAVE TO HAVE PLATELETS AT 4:00 THIS AM OTHER THAN THAT THINGS ARE ABOUT THE SAME.

BRIAN AND COY HAVE BEEN HERE ALL MORNING, THEY WENT TO GET SOME LUNCH WITH HANNAH AND LUKE, SO I GUESS I WILL ORDER SOME LUNCH ALSO.

IF ANYTHING EXCITING HAPPENS I WILL LET YOU KNOW, I HAVENT SEEN A DR YET TODAY.

THANKS FOR BEING MY FRIENDS!!!!LOVE YOU BRENDA

OCTOBER 28, 2008

HI EVERYONE,

WELL WE ARE OFF AND RUNNING, FINALLY GOT THE TREATMENT AT 12:30, IT LASTED FOR 2 HOURS GIVEN THRU AN IV. THERE WERE NO COMPLICATIONS. IM AFRAID THE LACK OF SLEEP AND THE PRE MEDS ARE CATCHING UP WITH ME, A LITTLE TIRED, BUT I THINK I CAN HANDLE THAT.
ITS HARD TO STAY INSIDE WHEN THE SUN IS SHINING SO BRIGHTLY, BUT TOMORROW IS WED ALREADY, I WILL BE OUT THERE BEFORE I KNOW IT.

I GUESS THATS ALL I KNOW TODAY, TALK TO YOU TOMORROW. LOVE BRENDA AND BRIAN

MONDAY OCTOBER 27, 2008

GOOD AFTERNOON EVERYONE,

WE ARE HERE AT THE HOSPITAL ALL CHECKED IN AND READY FOR THE BIG FIGHT!!! ITS BEEN A CRAZY DAY GETTING CHECKED IN AND ALL BUT THINGS ARE SLOWING DOWN. THEY WILL BE BOTHERING ME EVERY HOUR TO CHECK BLOOD SUGAR AS THEY ARE GIVING ME AN IV THAT HAS SUGAR IN IT ALSO SO THEY HAVE TO MONITOR THE LEVELS HOURLY. GLAD ITS JUST FOR A FEW DAYS. I HAVE ALL MY PREP STUFF TODAY AND THE TREATMENT TOMORROW AT 10:00. THEY SAY IT WILL TAKE AN HOUR OR SO. THEY ARE PLANNING FOR ME TO BE OUT OF THE HOSPITAL BY FRIDAY SO I CAN GO TRICK OR TREATING. THIS IS MY NUMBER FOR NOW, THEY TALK LIKE I WILL BE MOVING SO WILL KEEP YOU POSTED, I DONT THINK I WILL EVEN UNPACK. 303 -839- 6216 RM 3216.

THATS ALL WE KNOW FOR NOW, SO FAR SO GOOD! LOVE TO YOU ALL BRENDA AND BRIAN

SUNDAY OCTOBER 26, 2008

GOOD MORNING,

THURS- BRIAN AND I BABYSIT LITTLE LUKE, UNCLE BRIAN DID MOST OF THE WORK, LUKE WAS A SNUGGLE BUG AND WENT RIGHT TO BED AFTER SOME PLAY TIME. SO NOT A LOT OF WORK THERE. MOM AND KAYLA GOT HERE, SO NICE TO HAVE THEM HERE SAFE.

FRI- MOM AND I WENT TO HOSPITAL AT 9:30 TO GET 2 UNITS OF BLOOD THAT TOOK TOOK UNTIL 1:30. THEN BRIAN AND KAYLA MET US AT THE CLINIC FOR THE DOCTORS APPOINTMENT. 80% OF THE CANCER IS BACK, I WILL BE GOING INTO THE HOSPITAL ON MONDAY TO TRY A NEW DRUG, MONDAY WILL BE A PREP DAY, TUES GET THE DRUG AND POSSIBLE OUT BY FRIDAY. WOW HOWS THAT FOR NEWS. WE WERE ABLE TO TAKE OUR MINDS OFF THINGS BY WATCHING LUKE AGAIN THAT NITE SO COY COULD TAKE HANNAH THE B-DAY GIRL(BIG 30) TO SUPPER.

SAT- WE MET COYS AND JEFFS AT THE CHEESECAKE FACTORY FOR LUNCH FOR HANNAHS B-DAY AND WALKED AROUND THE 16TH STREET MALL. LATER WE WENT TO CHURCH WITH COY AND HANNAH TO LISTEN TO HANNAH SING, COYS CHURCH GROUP HAD A SURPRISE PARTY FOR HER SO WE WATCHED LUKE, JEFFS CAME OVER AND HUNG OUT WITH US. WE SPENT TO NITE AND HAD A GREAT TIME. THE LITTLE ONES WERE SOOOO CUTE.

SUN- MOM AND KAYLA WILL HAVE TO LEAVE US, I WILL GET READY FOR A SHORT (CROSS YOUR FINGERS) STAY IN THE HOSPITAL, I SHOULD HAVE INTERNET THERE SO WILL KEEP YOU POSTED.

WITH ALL MY HEART, BRENDA

THURSDAY OCT 23, 2008

GREETINGS FROM SUNNY COLO,

THE SUN IS SHINING,ITS A LITTLE BRISK BUT LOOKS LIKE IT IS GOING TO BE A NICE DAY. I STARTED THE DAY OUT STARTING SOME LAUNDRY, I HAD SOME SOAP IN THE CAR THAT I WANTED TO USE SO I TOOK OUT SOME TRASH, GRABBED THE SOAP (7:30 AM) AND HEADED BACK, WELL I FORGOT MY KEY TO THE OUTSIDE DOOR AND THERE I WAS,HANDS FULL AND COLD. LUCKY FOR FOR ME ONE OF THE WORKERS WAS IN THE OFFICE AND LET ME IN WHILE DOING SO SHE LOCKED HERSELF OUT OF THE OFFICE, SO SHE CAME TO THE APARMENT AND HUNG OUT TIL THE OTHER WORKERS STARTED COMING TO WORK. INTERESTING WAY TO START THE DAY HUH? MOM AND KAYLA ARE COMING TO SEE US SO WE ARE GETTING READY FOR THEM!!!! I COME DOWN AND PLAY ON THE COMPUTER AND BRIAN CLEANS, CANT BEAT A DEAL LIKE THAT!!! WE ARE GOING TO COY AND HANNAHS TONITE TO WATCH LUKE FOR A FEW HOURS.

YESTERDAY WAS A LONG DAY BUT MADE IT THRU. THE BONE BIOPSY WENT WELL, THE WORST PART WERE THE FOUR SKIN BIOPSYS, ONE GAL WAS CUTTING THEM OUT AND THE OTHER STITCHING THEM UP AND 2 NURSES ASSISTING, IT WENT ALOT FASTER THAT WAY. THEY KEPT ME NICE A COMFORTABLE WITH DRUGS!!

I GOT A PHONE CALL EARLY THIS AM FROM THE CLINIC AND THEY FORGOT TO TELL ME YESTERDAY TO DECREASE MY STEROID BY 20 MG!!!!! THATS GOOD NEWS.

TALK TO YOU SOON, LOTS OF LOVE BRENDA

WED OCT 22, 2008

GOOD AFTERNOON,

JUST A QUICK NOTE BEFORE HEADING OUT TO MY APPOINTMENT. WE HAVE BEEN TO THE CLINIC ALREADY, THEY DREW BLOOD AND YES I HAD TO HAVE PLATELETS SO WENT TO HOSP AND DID THAT BY 10:30, STOPPED BY TO SEE DEBBIE, SHE HAD HER TRANSPLANT ON FRIDAY AND IS DOING WELL.WE WERE WALKING HOME AND RAN RIGHT SMACK INTO ALAN AND CLEO ROBERTS, HE IS DOWN HERE GETTTING HIS 2 MONTH CHECK UP, SMALL WORLD HUH. WE ARE HEADED BACK TO CLINIC AT 2:00, WILL HAVE BONE BIOPSY AND WAS INFORMED THAT I WILL BE HAVING A FEW SKIN BIOPSYS ALSO, MAYBE WE WILL GET TO THE BOTTON OF THE RASH SITUATION! LOOKS LIKE TOMORROW MAY NEED TO BE A REST DAY HUH?

I WONT KNOW ANYTHING UNTIL AT LEAST FRIDAY, WE KNOW THE NEWS WONT BE GOOD BUT MAYBE THEY WILL KNOW WHERE TO GO FROM HERE!!! I CONTINUE TO FEEL ALL OF YOUR WARMTH, PRAYERS AND GOOD WISHES!!! LOVE TO ALL BRENDA

OH YEA, YESTERDAY WE FINALLY MADE IT TO THE CITY PARK, WALKED ALMOST 5 MILES AROUND THE THING, THEN TOOK A LITTLE DRIVE, WAS NICE TO GET OUT AND DRIVE. FAITH, ONE OF MY SWEET NURSES CAME BY FOR TEA AND COOKIES. SHE IS GETTING READY TO GO VISIT HER FAMILY IN KENYA FOR A MONTH AND WANTED TO CHECK ON ME.

WED OCT 22, 2008

MONDAY OCTOBER 20, 2008

HI EVERYONE,

EARLY MONDAY MORNING OFF TO THE CLINIC WE GO, GOT SOME BLOOD DRAWN,(I HAVE TO GO IN EARLY WED FOR A BLOOD TEST BECAUSE THEY ARE PRETTY SURE I WILL NEED PLATELETS AGAIN SO WILL GET THAT DONE BEFORE BIOPSY) TALKED MY NURSE INTO FLUSHING SOME WAX OUT OF MY EARS (BARB ARENT YOU GLAD YOU DIDNT HAVE TO DO THAT), THE NURSE PRACTITIONER CAME IN CHECKED ME OVER, TALKED RASH AND CAME HOME. I WILL BE SEEING THE SAME NURSE ON WED SO MAYBE WE CAN GET A HANDLE ON THE RASH, I HAVE SO MANY DIFFERENT PEOPLE LOOKING AT IT EACH TIME I GO THAT NO ONE EVER SEES IT TWICE SO NO ONE REALLY KNOWS WHATS GOING ON. DOCTOR/NURSE/CLEANER/CAREGIVER/BROTHER/BRIAN AND I THINK IT IS TRYING TO DRY UP. IF IT IS GETTING BETTER WED THEY WILL BE ABLE TO DECREASE THE STEROIDS SOMEMORE, WE CAN ONLY HOPE. WE HAVE LOTS TO BE PRAYING FOR THIS WEEK. I CAN FEEL ALL OF YOUR LOVE AND SUPPORT EACH AND EVERY DAY. THANK YOU THANK YOU THANK YOU.

LOVE TO ALL BRENDA AND FAMILY

SUNDAY OCT 19, 2008

GOOD EVENING BLOGGER FAMILY,

LETS START WITH FRIDAY- MY FRIEND LOUISE CAME TO SEE US, SHE GOT HERE AT 7 AM, WE WENT TO CLINIC AT 8, SHE AND I WENT TO TARGET, CAME BACK HAD LUNCH WITH BRIAN, WATCHED THE PINK TIGER VIDEO(STILLL NOT A DRY EYE) LOOKED AT PHOTOS AND GOT READY TO GO OUT FOR DINNER.COY WENT WITH US. WE HAD A GREAT DINNER, GOT HOME AND ROOKIE DIABETIC BRENDA GAVE HERSELF TOO MUCH INSULIN SO HAD TO GO TO HOSPITAL TO MAKE SURE ALL WAS OKAY AND IT WAS.SO WE CAME BACK AND WATCHED A MOVIE. I MADE EVERYONE PRETTY NERVOUS, I AM CAUSING ALOT OF PEOPLE ALOT OF GREY HAIR, GOOD THING I DONT HAVE ANY.HAHA.

SAT- WE TOOK LOUISE TO THE CHEESE CAKE FACTORY FOR LUNCH, THEN SHE LEFT US. JEFF CAME OVER AND SPENT THE EVENING WITH US.

SUN- WE WERE GOING TO WALK AROUND THE CITY PARK, GOT READY TO GO AND ALL THESE RUNNERS STARTED RUNNING BY, I MEAN ALOT OF PEOPLE!! SO WE JUST JOINED IN (ON THE SIDEWALK OF COURSE) WE WERE IN THE MIDDLE OF A MARATHON, IT WAS PRETTY COOL. WE ENDED UP WALKING 6 MILES. AT THE PARK I SAW MY FIRST HOMELESS PERSON PLANTED UNDER A BIG TREE, THEY (BRIAN THINKS THERE WERE 2 PEOPLE UNDER THE COMFORTER) WERE ALL COVERED UP, HAD A CAN OF SOUP, 5 GALLON BUCKET, BOTTLED WATER,SHOES, THEIR PIECE OF CARDBOARD (DIDNT SEE WHAT IT SAID)AND OF COURSE AN EMPTY BOTTLE OF BUZZ LAYING NEXT TO THEM. WE ARE NOW AT COYS WATCHING FOOTBALL AND CATCHING UP ON THE COMPUTER, HE EVEN FED US SUPPER. HANNAH AND LUKE ARE IN IOWA SO WE ARE KEEPING HIM COMPANY.

LETS HOPE FOR A GREAT NEXT WEEK!! LOVE TO ALL BRENDA AND FAMILY

THURSDAY OCTOBER 16, 2008

HI EVERYONE,

CAN YOU BELIEVE ITS THURSDAY ALREADY? WE THOUGHT WE WERE GOING TO HAVE A SEMI-SLOW DAY BUT THE DAY IS ALMOST GONE AND WE ARE STILL GOING. STARTED OUT WITH THE PUVA TREATMENT, WHICH WE ARE GOING TO STOP FOR AWHILE. NEED TO MAKE SURE I AM NOT HAVING A DRUG REACTION(I HAVE TO TAKE PILLS TO INCREASE THE EFFECT OF THE SUN BEFORE TREATMENT), ALSO YESTERDAY THE DOCTOR PUT ME ON ANOTHER PILL TO LOWER MY WHITE BLOOD CELLS AND DECREASED THE STEROID BY 10 MG SO LETS HOPE TO HEAVENS THAT THEY WILL ALL PLAY NICE TOGETHER. I READ IN MY DISCHARGE PAPERS THAT THEY WANTED TO TAPER OFF THE PREDNISONE EVERY WEEK AND ITS BEEN A MONTH SO I REALLY NEED OFF THE STUFF SO MY DONOR CAN TAKE OVER, BUT I HAVE TO BE ON IT BECAUSE THE CANCER KEEPS GROWING AND THE DONOR CANT DO BOTH, BUILD NEW CELLS AND FIGHT THE CANCER. WOW WHAT A TANGLED WEB.

MY FRIEND DEBBIE IS SUPPOSE TO HAVE HER TRANSPLANT TODAY, WE SAW HER YESTERDAY SHE LOOKS GOOD. TODAY KATHY AND RICK ARE COMING OVER TO THE APARTMENT TO VISTIT US SO WE WILL GET THE SCOOP ON HOW SHE IS DOING.

I WONT HAVE INTERNET UNTIL MONDAY UNLESS WE GO TO JEFFS OR COYS SO WE WILL CATCH UP ON MONDAY IF NOTHING ELSE. LOVE, BRENDA AND FAM

WED OCT 15, 2008

GOOD WEDNESDAY MORNING,

JUST GOT BACK FROM THE CLINIC, NOTHING TOO EXCITING. EVERYONE HAS A DIFFERENT IDEA ABOUT THE RASH. I SAW A NURSE PRACTITIONER THAT DIDNT KNOW TOO MUCH, SHE CONTACTED MY DR. THEY ARE PUTTING ME ON ANOTHER MED TO HELP WITH THE GVH AND THAT ALSO ALLOWED THEM TO GO DOWN ON THE PREDNISONE 20 MG. I HAVE TO GO BACK TO THE HOSPITAL AT 2:30 FOR PLATELETS AND I WILL THEN STOP IN TO SEE DEBBIE, SHE HAS HER TRANSPLANT TOMORROW.

THE SUN IS SHINING BRIGHTLY BUT STILL A LITTLE CHILL IN THE AIR, PERFECT FOR WALKING.
TOMORROW IS MY PUVA TREATMENT THEN BACK TO CLINIC ON FRIDAY AND THERE WE ARE ANOTHER WEEK GONE. JUST GOT OFF THE PHONE WITH JEFF HE AND HIS FAMILY ARE STILL SICK WITH COLDS, COY STAYED HOME MONDAY SICK SO WE HAVENT BEEN AROUND THEM EITHER.

THATS ALL THE NEWS FOR NOW. THANKS FOR KEEPING ME IN YOUR THOUGHTS AND PRAYER. LOVE BRENDA AND FAMILY

TUESDAY OCT 14, 2008

GREETINGS FROM NOT SO WHITE COLO,

IT RAINS HERE A LITTLE BUT LUCKILY NO SNOW. WE HAVE STILL BEEN ABLE TO WALK WHEN WE NEED TOO. TODAY HAS BEEN OUR GET PAPER WORK ETC. DONE, TAKE A WALK AND NOW GETTING READY TO EAT AND YES BRIAN IS DOING ALOT OF THE COOKING AND IT IS VERY GOOD! THEN OFF TO THE COUCH I WILL PROBABLY GO TO START TALKING ON THE PHONE AND WATCHING DANCING WITH THE STARS.

WE RAN INTO STACI AND WADE, THEY ARE DOING GOOD. STACI HAD JUST HAD A BONE BIOPSY SO THEY WILL KNOW HOW THINGS ARE GOING BY THE END OF THE WEEK. TALKED TO DEBBIE SHE HAS HER TRANSPLANT ON THURSDAY SO WE HOPE TO MAKE IT OVER TO SEE HER TOMORROW AFTER MY APPOINTMENT. DEBBIE SAID SHE HAD TALKED TO KATY AND THEY HAD GOTTEN GOOD NEWS SO NEED TO CALL HER AND SEE WHAT THAT WAS. AND ME I AM HANGIN TOUGH!!

SO NOT ALOT OF ACTION TODAY WHICH IS NICE, I SEE THEY HAVE A MEETING HERE IN THE OFFICE SO I HOPE I CAN GET ON THE COMPUTER AT SOME TIME. TAKE CARE WE LOVE YOU ALL BRENDA AND FAMILY.

Monday October 13, 2008

GOOD AFTERNOON EVERYONE,

WOW WHERE DO WE START. OUR WEEKEND WENT SO FAST. SAT WE GOT UP HAD A NICE BIG LATE BREAKFAST, WATCHED SOME TV, DID SOME RUNNING AROUND GOT HOME HAD DESSERT WHILE SUPPER WAS FINISHING THEN PLUGGED IN OUR PINK TIGER DVD AND CRIED LIKE LITTLE BABIES. HOW VERY SPECIAL YOU ALL MADE IT, JUST TO SEE EVERYONE AND HOME WAS UNBELIEVABLE I STILL CANT BELIEVE THAT IT WAS ALL FOR ME, YOU ARE ALL HELPING SO MUCH TO MAKE THIS MORE BEARABLE.WE ARE STILL TRYING TO READ THE ENTIRE CARD. WE HUNG IT ON THE WALL SO I CAN LOOK AT IT EVERYDAY. THEN WE MADE THE BOYS WATCH A NOT SO GOOD CHICK FLICK. THEN SUNDAY CAME ALL TOO FAST AND THE WEATHER WAS BAD AT HOME SO WE GOT KAYLA AND RICK ON THE ROAD BY 9:30, THEY DIDNT HAVE ANY PROBLEMS THANK GOODNESS. WE GOT THEM ON THE ROAD AND TOOK A 3 MILE WALK DOWN 18TH ST.AND BACK. HAD SOME BREAKFAST, DID LAUNDRY, SOME CLEANING AND GOT READY TO WATCH THE BRONCOS.

TODAY WE HAD CLINIC, BLOOD COUNTS WERE OKAY, THE DR TALKED ABOUT THE NEXT BONE BIOPSY ON THE 22ND WHERE WE SEE WHERE WE REALLY STAND, BUT THEY DONT THINK THIS CHEMO IS WORKING WELL, AND OPTION 2 THAT WE WANTED I CANT HAVE BECAUSE I HAVE HAD AN ALLO TRANSPLANT, SO OPTION 3 BETTER BE THE ONE. WE LEFT CLINIC HEADED FOR APT HAD SOME LUNCH SO I COULD TAKE MY "TANNING PILL", THEN AT 2 WE WENT FOR THAT TREATMENT, NOW WAS LUCKY ENOUGH TO GET ON THE COMPUTER AND PLAY CATCH UP. WE DONT HAVE ANYTHING SCHEDULED FOR TOMORROW SO WILL CATCH UP ON THING AROUND HERE.

THANKS FOR BEING MY FRIENDS!!!LOVE YOU BRENDA AND MY WONDERFUL CAREGIVER BRIAN

FRIDAY OCTOBER 10, 2008

GOOD EVENEING,

HERES ANOTHER WEEK GONE BY,BRIAN, KAYLA, RICK AND I WENT TO MY 10:00 CLINIC APPT. EVERYTHING CHECKED OUT OK, THE DR DID DECREASE BY STEROID BY 20 MG SO THATS GOOD. THE RASH SEEMS TO BE THE SAME, THE SKIN BIOPSY SHOWED THAT IT MAY A LITTLE DRUG REACTION BUT NOTHING TO WORRY ABOUT AND TO CONTINUE WITH TREATMENT. I HAVE MY NEXT BONE BIOPSY ON THE 22ND SO THAT WILL BE OUR REAL TEST. WE THEN WENT HOME TO FIND THAT SOMEONE LEFT US LUNCH, SO WE ATE IT UP.

TROY AND TAMMY JENSEN (AND KIDS) CAME BY TO SEE US, IT WAS SO GOOD TO SEE THEM.

WE ARE NOW AT COY AND HANNAHS, COY IS PUTTING SOME IOWA PORK CHOPS ON THE GRILL FOR US. LUKE IS BEING EXTRA CUTE AND SHOWING US HOW HE CAN ROLL AROUND, SIT UP AND HANG OUT ON ALL FOURS. HOW FUN IT IS TO WATCH. AND NOT TO MENTION LOTS AND LOTS OF SMILES!!! AFTER SUPPER WE ARE GOING TO WATCH A DVD THAT HAS BEEN SENT TO ME FROM HOME OF THE PINK TIGERS WALK, CANT WAIT TO SEE EVERYONE. LOVE YOU GUYS, THANKS AGAIN FOR ALL THE SUPPORT, LOVE THE CARD TOO.

HOPE YOU HAVE A GREAT WEEKEND!!! LOVE YOU AND MISS YOU BRENDA AND MY CLAN.

THRUSDAY OCT 9, 2008

HI EVERYONE,

WE ARE BACK FROM THE TANNING TREATMENT, WE LEFT FEELING A LITTLE BETTER, I SAW THE DERMATOLOGIST(THAT IS WHERE I HAVE THE TREATMENTS) AND HE SEEMS TO THINK THAT THINGS ARE FINE JUST THAT MY SKIN IS A LITTLE SENSITIVE, CANT WAIT TO SEE WHAT THE DOCTOR SAYS TOMORROW. BRIAN AND I HAVE TO VISIT THE DRUG STORE/LIQUOR STORE FOR SOME RASH CREAM AND IT IS ALSO ON COLFAX SO FIGURE. THERE IS NEVER A DULL MOMENT. I HOPE TO GET ON THE COMPUTER TOMORROW AND LET YOU KNOW.

HAVE A GREAT DAY, LOVE YA BRENDA AND BRIAN

WED OCT 8,2008

HI EVERYONE,

FINALLY AM HOME FROM APPT WE HAD A 2:00 TODAY. I DONT EVEN KNOW WHAT MY NUMBERS ARE, WE GOT THERE AND THEY WERE MORE INTERESTED IN MY RASH. THE DOCTOR THINKS ITS GVHD AND THE NURSE PRACTITIONER THINKS ITS FROM THE MEDS I TAKE BEFORE MY PUVA TREATMENT, SO THEY TOOK A SKIN BIOPSY TO KNOW FOR SURE. AND GUESS WHAT THEY STILL CANT NOT FIND ALL OF THE RESULTS FROM THE TRANSPLANT. I AM STILL MAKING CANCER CELLS, THE CHEMO I HAD IS A SLOWER ACTING TREATMENT SO THEY DONT KNOW IF I AM NOT RESPONDING OR ITS GOING TO BE SLOW, STILL NO NEWS. I AM PRETTY SURE I WILL BE CRAZY BEFORE ITS OVER.

TOMORROW IS PUVA AT 10:00 THEN WE HAVE TO STAY INSIDE UNTIL THE SUN GOES DOWN, WE WILL BE DOING LAUNDRY AND WAITING FOR KAYLA AND MY FRIEND RICK TO COME AND SEE US. THE WEATHER MIGHT TURN COLD FOR THE WEEKEND, BUT WILL STILL BE NICE TO SEE FAMILY AND FRIENDS FROM HOME.

HOPE TO HAVE BETTER NEWS SOMEDAY!!! LOVE, BRENDA AND BRIAN

TUESDAY OCTOBER 7, 2008

GOOD MORNING,

WE ARE BACK FROM THE PUVA TREATMENT, THEY THINK THE WELTS MAY BE FROM THE TREATMENT SO THEY BACKED OFF A LITTLE ON IT TODAY. SO IT REALLY DIDNT TAKE VERY LONG. TODAY WILL BE A CATCH UP DAY AT THE APARTMENT. I HAD A NURSE CALL FROM THE CANCER CLINIC, THEY ARE STILL TRYING TO FIND ALL OF MY TEST RESULTS,SO MAYBE TOMORROW THEY WILL REALLY HAVE SOMETHING TO TELL US.

LAST NITES SUPPER WAS GREAT, WE MET A NEW MOM AND SON FROM FT. COLLINS. THEY SENT HOME LEFTOVERS SO BRIAN CAN HAVE THAT FOR LUNCH TODAY. I AM HOOKED ON COLD CUT SANDS FOR LUNCH.

HAVE A GOOD ONE, LOVE YA BRENDA AND BRIAN

MONDAY OCT 6, 2008

GOOD AFTERNOON,

HAPPY MONDAY, WE ARE FINALLY BACK FROM APPOINTMENTS. MY 10:00 CLINIC LASTED TIL ALMOST NOON AND I STILL KNOW NOTHING THEY ASSURE IS ON WEDNESDAY THEY WILL HAVE THE RESULTS WE HAVE BEEN WAITING FOR, NOT SURE WE NEED TO KNOW AS WE ALREADY KNOW THE TRANSPLANT WAS NOT A COMPLETE SUCCESS. THEN WE MADE OUR WAY OVER TO THE HOSPITAL TO GET SOME PLATELETS, FIRST TRANSFUSION, SO THATS GOOD. I WILL HAVE ANOTHER BONE BIOPSY IN A COUPLE OF WEEKS THAT WILL TELL IF THIS CHEMO IS WORKING. ALSO WILL HAVE ANOTHER SPINAL TAP TO MAKE SURE THERE ARE NO CANCER CELLS IN SPINE OR BRAIN. THE RASH SEEMS TO BE STABLE, THEY THOUGHT IT LOOKS THE WAY IS DOES BECAUSE OF THE PUVA TREATMENTS, TIME WILL TELL THERE ALSO. SO SORRY I DONT KNOW MORE BUT THOUGHT I WOULD CHECK IN.

TONITE IS FAMILY NITE AT BRENTS AND THE GIRLS JUST TOLD ME THAT THE OLIVE GARDEN IS THE ONE PROVIDING SUPPER TONITE, THAT SHOULD BE GOOD!!! NICE NOT TO HAVE TO COOK AGAIN TONITE. ALTHOUGH BRIAN IS DOING A GREAT JOB OF COOKING, AND CARING FOR ME. COY GRILLED STEAKS LAST NITE SO WE ARE DOING WELL.

WE NEED TO SAY AN EXTRA PRAY FOR COUSIN COURTNEY AND HER FAMILY AS SHE GAVE BIRTH TO TWINS ON SAT. AND THE LITTLE BOY DID NOT MAKE IT, OUR HEARTS GO OUT TO THEM.

HAVE A GREAT DAY. LOVE BRENDA AND BRIAN

SUNDAY OCT 5, 2008

GOOD AFTERNOON,
WE ARE KICKED BACK WATCHING SOME FOOTBALL WITH COY, HANNAH AND LUKE. HANNAH AND I JUST GOT BACK FROM WALMART GETTING READY FOR ANOTHER WEEK.

WE GOT UP THIS AM AND MY RASH ON MY HANDS LOOKED MORE LIKE WELTS SO WE WALKED TO THE CLINIC TO MAKE SURE EVERYTHING WAS OK AND THE DR SEEMS TO THINK IT IS FROM MY PUVA (SUNTANNING BED) TREATMENT. WE WILL SEE TOMORROW WHAT THEY SAY.

YESTERDAY COUSIN MIKE AND GIRLFRIEND ROBIN TOOK US TO THE 16TH STREET MALL AND CHEESE CAKE FACTORY FOR LUNCH, IT WAS SOOOOO GOOD. KRISIT FERDERER AND COUSIN JENNY MET US THERE, SO GOOD TO SEE THEM. FUN WAS HAD BY ALL. DOWN TOWN IS VERY INTERESTING YOU ARE LIKELY TO SEE ANY AND EVERYTHING. THEY TOOK US HOME WHERE WE RETIRED FOR THE EVENING, I ACTUALLY GOT SOME PICTURES WRITTEN ON.

HI FROM EVERYONE HERE, THE HOMESICK WYOMINGITS. LOVE TO ALL BRENDA AND FAMILY

FRIDAY OCTOBER 3, 2008

HELLO EVERYONE,

SO SORRY FOR THE DELAY, NO COMPUTER FOR A FEW DAYS.
WED- HAD BLOOD DRAWN AT CLINIC AND NUMBERS ARE STILL OK, THEN WE WENT TO MY FIRST PUVA (TANNING BED)TREATMENT, IT TOO ABOUT 30 SECONDS. I CANT NOT BE IN THE SUN THE ENTIRE DAY THAT I HAVE THAT TREATMENT, ITS PRETTY INTERESTING TO SEE ME ALL WRAPPED UP GETTING TO MY APPT. I DO HAVE PICTURES THAT I WILL SHARE WITH YOU.
THRU-WAS MY DOWN DAY, GOT UP LATE AND TOOK IT EASY THE REST OF THE DAY.
FRI-WOKE UP A NEW WOMEN, AND FINALLY GOT TO THE COMPUTER, IT TOOK 3 TRIES BUT I GOT IT DONE.BRIAN HAD CLEANING CHORES TO DO THIS AM. MELISSA CAME TO VISIT, BRIAN MADE US LUNCH AND NOW WE ARE GETTING READY TO GO TO DRS APPT.SO I DONT HAVE ANY NEWS AS OF NOW, HOPE TO UPDATE YOU OVER THE WEEKEND.

HAVE A GREAT WEEKEND!!LOVE TO ALL BRENDA AND BRIAN

Thur.Oct.2

Hi. Just alittle note to let everyone know she's doing well , just hasn't gotten close to a computer for a couple of days. The rash treatment didn't take as long as getting all garbed up to go. She can not be exposed to any sun after she takes the pill so it sounds like all she needs is her on shopping cart and she would fit right in with alot of the neighborhood. Brian must take a picture !! Tomorrow she has her Dr. appt. and the rash treatment so will have a busy day. Not much else going on ( how wonderful is that) . Today she rested most of the day sounds like she had gotten alittle wore down. Hopefully tomorrow will be equally as uneventful and she just keeps doing well and feeling well. Until another day Love to all chick